Active Research Projects

  • Cerebral palsy and congenital heart disease
  • Neurodevelopmental outcomes in neonatal seizures
  • Muscular dystrophy clinical trials
  • Genetics of muscular dystrophy
  • MEGF10 myopathy
  • Cockayne syndrome


The Centers for Disease Control and Prevention (CDC) funds the Muscular Dystrophy Surveillance, Tracking, and Research Network, known as MD STARnet. MD STARnet collects critical information about muscular dystrophy that aims to improve care for those living with the disease.